Foundations
OpenOnward Foundations is a crowd-sourcing platform to catalog the biomedical research activities that take place at disease-focused, non-profit organizations around the world. These efforts can be easily shared and accessed through search, sort, and filter functions to help facilitate the relationships between donors, scientists, and foundations that support biomedical research. Please join our family of passionate stakeholders and help drive therapies for your favorite causes!
Foundation Name | Specific Disease(s) or Condition(s) | General Disease Area(s) | Key Personnel | Grants Available | Website URL | Location or Address | EIN or Tax ID | |
---|---|---|---|---|---|---|---|---|
Dana-Farber Cancer Institute | Cancer | Oncology | Laurie H. Glimcher | Research | www.dana-farber.org | Dana-Farber Cancer Institute 450 Brookline Avenue Boston, MA 02115 | 04-2263040 | |
Cure LGMD2i Foundation | Limb-Girdle Muscular Dystrophy 2I (LGMD2I) | Neuromuscular | Research | www.curelgmd2i.com | 590 Centerville Road #340, Lancaster, PA | EIN 80-0680447 | ||
Conquistando Escalones Association | Limb-Girdle Muscular Dystrophy 1F (LGMD1F) | Neuromuscular | www.conquistandoescalones.org | |||||
National Cancer Center | Cancer | Oncology | Barry J. Peek | Research | www.nationalcancercenter.org | National Cancer Center 88 Sunnyside Boulevard Suite 307 Plainview, NY 11803 | 13-1919715 | |
SMA Angels Charity | Spinal muscular atrophy (SMA) | Neuromuscular, genetic disease | Anne Meguiar | Research | www.smaangels.org | PO Box 308 Richmond Hill, GA 31324 | 58-2562501 | |
International Pompe Association | Pompe disease - Glycogen storage disease type II | Neuromuscular | Research | www.worldpompe.org | Gen van Heutszlaan 6, 3743JN Baarn, The Netherlands | 32090949 | ||
ALS Worldwide | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | www.alsworldwide.org | 5808 Dawley Drive Fitchburg, WI 53711-7209 | ||||
American Psychiatric Association Foundation | Psychiatric disorders | Brain disease, Psychiatric disorders | Saul Levin, MD, MPA | Research | www.americanpsychiatricfoundation.org | 1000 Wilson Blvd. Suite 1825 Arlington, VA 22209 | 13-0433740 | |
Arthritis Foundation | Arthritis | Inflammation, Arthritis | Rowland W. Chang (Chair), Ann M. Palmer (President and CEO) | Research, Training | www.arthritis.org | 1355 Peachtree St NE, Suite 600, Atlanta, GA 30309 | 58-1341679 | |
The THANC Foundation | Thyroid and head and neck cancer, | Oncology | Erika Rauscher | Research | www.thancfoundation.org | The THANC Foundation 10 Union Square East Suite 5B New York, NY 10003 | 80-0062118 | |
The Jackson Laboratory | Diseases, Cancer | Diseases, Oncology | David J. Roux | Research | www.jax.org | 600 Main Street Bar Harbor, ME 04609 | 01-0211513 | |
Association Francaise contre les Myopathies (AFM) | Duchenne muscular dystrophy (DMD) | Neuromuscular | Christian Cottet | www.afm-france.org | Evry Cedex, France | |||
Duchenne Foundation (Merged with Save Our Sons, Australia in 2017) | Duchenne muscular dystrophy (DMD) | Neuromuscular | Deborah Robins | www.duchennefoundation.org.au | Smithfield Q, Australia | |||
Hope Now For ALS | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Research, and Clinical Trials | www.hopenowforals.org | ||||
A Kids' Brain Tumor Cure (PLGA Foundation) | Pediatric Low Grade Glioma | Oncology | Sponsored research, grants, and projects | www.akidsbraintumorcure.org | 98 Random Farms Drive Chappaqua, NY 10514 | 26-0295572 | ||
Retina Foundation of the Southwest | Age related macular degeneration, Amblyopia or lazy eye, Cataracts in infants and children, Cone rod | Eye disease, blindness | Karl Csaky | Research | www.retinafoundation.org | Retina Foundation of the Southwest 9600 North Central Expressway Suite 200 Dallas, TX 75231 | 51-0151514 | |
Foundation for the National Institutes of Health | Diseases | Diseases | Steven M. Paul, M.D. | Research | www.fnih.org | 9650 Rockville Pike Bethesda, MD 20814 | 52-1986675 | |
The Genesis Foundation for Children | Genetic diseases, disorders | Genetic diseases, disorders | Matthew Hoffman | www.thegenesisfoundation.org | The Genesis Foundation for Children 60 Temple Place Second Floor Boston, MA 02111 | 04-2760083 | ||
American Skin Association | Melanoma, skin cancer, skin disease | Skin disease | Kathleen Reichert | Research | www.americanskin.org | American Skin Association 6 East 43rd Street 28th Floor New York, NY 10017 | 13-3401320 | |
Ara Parseghian Medical Research Foundation | Niemann-Pick disease, type C | Genetic disease, lysosomal storage disease | Cindy Parseghian | Research | www.parseghian.org | Ara Parseghian Medical Research Foundation 4729 East Sunrise Drive Suite 327 Tucson, AZ 85718 | 86-0775966 | |
The Schepens Eye Research Institute | Eye disease, blindness | Eye disease, blindness | John Fernandez | Research | www.schepens.harvard.edu | The Schepens Eye Research Institute 20 Staniford Street Boston, MA 02114 | 04-2129889 | |
National Organization for Rare Disorders (NORD) | Pompe disease - Glycogen storage disease type II | Neuromuscular | Research | www.rarediseases.org | 55 Kenosia Avenue Danbury, CT 06810 | 501(c)(3) charity organization | ||
American Heart Association (AHA) | Heart diseases and Stroke | Cardiovascular diseases | Nancy Brown | Research | www.heart.org | American Heart Association National Center 7272 Greenville Avenue Dallas, TX 75231 | 13-5613797 | |
The Nemaline Myopathy Foundation | Nemaline Myopathy | Neuromuscular | Monette Smith | Research | www.nemaline.org | Nemaline Myopathy Foundation P.O. Box 5937 Round Rock TX 78683-5937 USA. | 501(c)(3) organization | |
Hereditary Disease Foundation | Huntington's disease | Hereditary diseases | Meghan Donaldson | Research | www.hdfoundation.org | Hereditary Disease Foundation 3960 Broadway 6th Floor New York, NY 10032 | 23-7376197 | |
Conquer Cancer Foundation of the American Society of Clinical Oncology (CCF) | Cancer | Oncology | Nancy Daly | Research | www.conquer.org | Conquer Cancer Foundation of the American Society of Clinical Oncology 2318 Mill Road Suite 800 Alex | 31-1667995 | |
Sabin Vaccine Institute | Infectious diseases | Infectious diseases | Amy Finan | Research | www.sabin.org | Sabin Vaccine Institute 2175 K Street NW, Suite 400 Washington, DC 20037 | 06-1389829 | |
Cystic Fibrosis Foundation | Cystic Fibrosis | Genetic disease | Catherine McCloud | Research | www.cff.org | Cystic Fibrosis Foundation 6931 Arlington Road 2nd Floor Bethesda, MD 20814 | 13-1930701 | |
Beyond Labels and Limitations | Limb-Girdle Muscular Dystrophy Type 2A (LGMD2A) | Neuromuscular | Conferences | www.beyondlabelslimitations.com | ||||
Muscular Dystrophy Canada | Neuromuscular disorders | Neuromuscular | www.muscle.ca | Toronto, Ontario, Canada | ||||
Rheumatology Research Foundation | Rheumatism or rheumatic disorder | Rheumatic disease, autoimmune disorders | Mary Wheatley, IOM, CAE | Research | www.rheumresearch.org | Rheumatology Research Foundation 2200 Lake Boulevard, NE Atlanta, GA 30319 | 58-1654301 | |
CURE Childhood Cancer | Cancer | Oncology | Kristin Connor | Research | www.curechildhoodcancer.org | CURE Childhood Cancer 1117 Perimeter Center West Suite N-402 Atlanta, GA 30338 | 58-1244138 | |
CurePSP: Foundation for PSP | CBD and Related Brain Diseases | Brain disease | Brain disease | William R. McFarland | Research | www.psp.org | 404 5th Avenue Third Floor New York, NY 10018 | 52-1704978 | |
Answer ALS | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Research | www.answerals.org | Answer ALS PO Box 24478 New Orleans, LA, 70184 | not-for-profit 501(c)(3) organization | ||
The Leukemia & Lymphoma Society | Leukemia, Lymphoma, Hodgkin's disease and Myeloma | Oncology | James H. Davis | Research | www.lls.org | The Leukemia & Lymphoma Society 3 International Drive Suite 200 Rye Brook, NY 10573 | 13-5644916 | |
Dysautonomia Foundation | Familial Dysautonomia (FD) | Hereditary sensory and autonomic neuropathy, genetic disorder, autosomal recessive disorder | Paul Schack | Research | www.familialdysautonomia.org | Dysautonomia Foundation 315 West 39th Street Suite 701 New York, NY 10018 | 13-6145280 | |
Jett Foundation | Duchenne muscular dystrophy (DMD) | Neuromuscular | Christine McSherry (President and CEO) | various | www.jettfoundation.org | Kingston, MA, USA | ||
JAR of Hope | Duchenne muscular dystrophy (DMD) | Neuromuscular | James Raffone (President and CEO) | Basic Science, Preclinical, IND-enabling, Phase 1, Phase 2 | www.jarofhope.org | Manalapan, NJ, USA | EIN 46-4134019 | |
National Parkinson Foundation | Parkinson's | Neurologic | Centers of Excellence, Preclinical Research, Clinical Research, Parkinson's Outcomes Project, Fellow | www.parkinson.org | 200 SE 1st Street, Suite 800, Miami, Florida 33131 | 59-0968031 | ||
Cure Alzheimer's Fund | Alzheimer's disease | Brain disease | Jeffrey Morby | Research | www.curealz.org | 34 Washington Street Suite 200 Wellesley Hills, MA 02481 | 52-2396428 | |
Swim Across America | Cancer | Oncology | Rob Butcher | Research | www.swimacrossamerica.org | Swim Across America 11600 N. Community House Road Suite 100 Charlotte, NC 28277 | 22-3248256 | |
Zack Heger Foundation | Duchenne muscular dystrophy (DMD) | Neuromuscular | Margie Heger | www.zackhegerfoundation.org | MA, USA | |||
Arthritis National Research Foundation | Arthritis (all conditions) | Arthritis | Shaun Skeris | Arthritis research grants, psoriatic arthritis grant, arthritis and aging grant | www.curearthritis.org | 5354 E. 2nd St. Suite 201 Long Beach, CA 90803 | 95-6043953 | |
Fight SMA (joined Gwendolyn Strong Foundation in 2017) | Spinal muscular atrophy (SMA) | Neuromuscular, genetic disease | Joe Slay | Research | www.fightsma.org | FightSMA 8016 Staples Mill Road Richmond, VA 23228-2713 | 54-1610701 | |
The Focused Ultrasound Foundation | Alzheimer's, and Parkinson's disease | Cardiovascular, Endocrine disorders, gastrointestinal, musculoskeletal, neurological, oncological, u | Neal Kassell | Research | www.fusfoundation.org | The Focused Ultrasound Foundation 1230 Cedars Court Suite 206 Charlottesville, VA 22903 | 20-5744808 | |
Children's Tumor Foundation | Neurofibromatosis (NF) | Oncology | Annette Bakker | Research | www.ctf.org | Children's Tumor Foundation 120 16th Floor New York, NY 10005 | 13-2298956 | |
BIO Ventures for Global Health | All | All | Jennifer Dent | Research | www.bvgh.org | BIO Ventures for Global Health 401 Terry Avenue North Seattle, WA 98109 | 30-0213137 | |
Parkinson’s Disease Foundation (PDF) | Parkinson's disease | Brain disease | Robin Elliott, John Kozyak | Research | www.pdf.org | Parkinson's Disease Foundation 1359 Broadway Suite 1509 New York, NY 10018 | 13-1866796 | |
Friends of Cancer Research | Cancer | Oncology | Jeff Allen | Research | www.focr.org | Friends of Cancer Research 1800 M Street NW Suite 1050 South Washington, DC 20036 | 52-1983273 | |
Prevent Cancer Foundation | Cancer | Oncology | Carolyn R. Aldigé | Research | www.preventcancer.org | Prevent Cancer Foundation | 52-1429544 | |
Muscular Dystrophy Association (MDA) | Neuromuscular disorders, Duchenne (DMD), Becker, Limb-Girdle, Miyoshi | Neuromuscular | www.mda.org | Chicago, Illinois, USA | ||||
Alliance for Lupus Research | Systemic lupus erythematosus (SLE) | Autoimmune disease | Robert Wood Johnson IV | Research | www.lupusresearch.org | Alliance for Lupus Research 28 West 44th Street Suite 501 New York, NY 10036 | 58-2492929 | |
The Robert Packard Center for ALS Research at Johns Hopkins | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Jeffrey D. Rothstein, MD, PhD | Research | www.alscenter.org | 5801 Smith Avenue, McAuley Suite 110 Baltimore, MD 21209-3652 | ||
Michael J. Fox Foundation for Parkinson's Research | Parkinson's disease | Brain disease | Todd Sherer, PhD | Research | www.michaeljfox.org | Michael J. Fox Foundation for Parkinson's Research Grand Central Station P.O. Box 4777 New York, NY | 13-4141945 | |
Pediatric Brain Tumor Foundation | Pediatric brain tumor, childhood cancer | Oncology | Robin Boettcher | Research | www.curethekids.org | Pediatric Brain Tumor Foundation 302 Ridgefield Court Asheville, NC 28806 | 58-1966822 | |
Vera Bradley Foundation for Breast Cancer | Breast cancer | Oncology | Lynda Houk | Research | www.verabradley.org | Vera Bradley Foundation for Breast Cancer 12420 Stonebridge Road Roanoke, IN 46783 | 35-2058177 | |
Bonfils Blood Center Foundation | Blood disease, cancer | Blood disease, cancer | Anne Burtchaell | Research | www.bonfils.org | Bonfils Blood Center Foundation 717 Yosemite Street Denver, CO 80230 | 74-2787586 | |
myFace | Craniofacial Cleft | Facial deformity | Carolyn Spector | www.myface.org | myFace 333 East 30th Street Lobby Unit New York, NY 10016 | 13-6013760 | ||
Les Turner ALS Foundation | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Research | www.lesturnerals.org | Skokie, IL, USA | EIN 36-2916466 | ||
ABC² (Accelerate Brain Cancer Cure) | Brain cancer | Oncology | Max Wallace | Research | www.abc2.org | ABC² (Accelerate Brain Cancer Cure) 1717 Rhode Island Avenue, NW Suite 700 Washington, DC 20036 | 52-2320756 | |
Macula Vision Research Foundation | Age-related macular degeneration | Eye disease | Karen & Herbert Lotman, Marvin L. Sears, MD, Shelly Lotman-Fisher | Research | www.mvrf.org | Macula Vision Research Foundation One Tower Bridge 100 Front Street, Suite 300 West Conshohocken, PA | 23-2876473 | |
Cure SMA | Spinal muscular atrophy (SMA) | Neuromuscular, genetic disease | Kenneth Hobby | Research | www.curesma.org | Cure SMA 925 Busse Rd Elk Grove Village, IL, 60007 | 36-3320440 | |
Texas Heart Institute | Heart diseases and Stroke | Cardiovascular diseases | James T. Willerson | Research, Fellowships, and Residencies | www.texasheart.org | Texas Heart Institute 6770 Bertner Avenue Houston, TX 77030 | 74-6053200 | |
Food Allergy Research & Education | Anaphylaxis | Food allergies | James Baker, Jr. | Research | www.foodallergy.org | Food Allergy Research & Education 7925 Jones Branch Drive Suite 1100 McLean, VA 22102 | 13-3905508 | |
The Scripps Research Institute | Cancer, Alzheimer's disease, Diabetes and obesity, mental illness, Parkinson's disease, and Cystic F | All | Peter G. Schultz, Ph.D. | Research, PhD programs, Master's programs, Residency programs, Post-Doctoral programs | www.scripps.edu | The Scripps Research Institute 10550 North Torrey Pines Road TPC2 La Jolla, CA 92037 | 33-0435954 | |
NephCure Kidney International | Chronic Kidney disease, Nephrotic Syndrome, Glomerular diseases | Kidney disease | Jessica Martin | Research | www.nephcure.org | NephCure Kidney International 150 South Warner Road Suite 402 King of Prussia, PA 19406 | 38-3569922 | |
Team Joseph | Duchenne muscular dystrophy (DMD) | Neuromuscular | www.teamjoseph.org | Commerce Township, MI, USA | ||||
Marigold Foundation | Myotonic Dystrophy | Neuromuscular | Don McKenzie (Executive Director), Sarah Howe (Program Manager) | www.marigoldfoundation.org | Calgary, Alberta, Canada | |||
Pietro's Fight | Duchenne muscular dystrophy (DMD) | Neuromuscular | Manni Scarso (President and CEO) | Basic Science, Preclinical, IND-enabling, Phase 1, Phase 2 | www.pietrosfight.org | Brooklyn, NY, USA | ||
Autism Research Institute | Autism | Neurodevelopmental disorder | Kimbery Taylor | Research | www.autism.com | 4182 Adams Avenue San Diego, CA 92116 | 95-2548452 | |
Discovery Eye Foundation | Age-related macular degeneration, dibetic retinopathy, glaucoma, keratoconus, and retinitis pigmento | Eye disease, blindness | Anthony Nesburn | Research | www.discoveryeye.org | Discovery Eye Foundation 17315 Studebaker Road Suite 115 Cerritos, CA 90703 | 95-4228653 | |
Entertainment Industry Foundation | Lisa C. Paulsen | Research | www.eifoundation.org | Entertainment Industry Foundation 1900 Avenue of the Stars Suite 1400 Los Angeles, CA 90067 | 95-1644609 | |||
Juvenile Diabetes Research Foundation (JDRF) | Diabetes mellitus Type 1 | Metabolic disorder | Mark Fischer-Colbrie | Research | www.jdrf.org | JDRF 26 Broadway, 14th floor New York, NY 10004 | 23-1907729 | |
Parkinson's Unity Walk | Carol Walton | Research | www.unitywalk.org | Parkinson's Unity Walk 4454 Route 27 Floor 2 Kingston, NJ 08528 | 13-3842415 | |||
Campbell Foundation | Orthopaedic medicine | Orthopaedic medicine | George Hernandez | Research | www.campbell-foundation.org | Campbell Foundation 1400 South Germantown Road Germantown, TN 38138 | 62-0548038 | |
William Sansum Diabetes Center | Diabetes mellitus Type 1, Type 2 | Metabolic disorder | Sandra Tillisch Svoboda | Research | www.sansum.org | William Sansum Diabetes Center 2219 Bath Street Santa Barbara, CA 93105 | 95-1684086 | |
Association Francophone des Glycogenoses (AFG) | Pompe disease - Glycogen storage disease type II | Neuromuscular | Philip Maes | Research | www.glycogenoses.org | |||
National Association of Chain Drug Stores Foundation | All | All | Kathleen Jaeger | Research | www.nacdsfoundation.org | National Association of Chain Drug Stores Foundation 1776 Wilson Boulevard Suite 200 Arlington, VA 2 | 51-0144922 | |
The Family Group of Beta-sarcoglycanopathy (GFB ONLUS) | Limb-Girdle Muscular Dystrophy 2E (LGMD2E) | Neuromuscular | www.lgmd2e.org | Via Civasca 112, Talamona, Sondrio, Italy, 23018 | ||||
ALS Finding a Cure | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Research | www.alsfindingacure.org | Stamford, CT, USA | |||
Coalition to Cure Calpain 3 (C3) | Limb-Girdle Muscular Dystrophy 2A (LGMD2A) | Neuromuscular | www.curecalpain3.org | |||||
Little Hercules Foundation | Duchenne muscular dystrophy (DMD) | Neuromuscular | Kelly Maynard | www.littleherculesfoundation.org | Dublin, OH, USA | |||
The Clifton R. Lewis Good Life Foundation | Muscular Dystrophy | Neuromuscular | Conferences, Research | www.crlgoodlife.org | ||||
Susan G. Komen | Breast cancer | Oncology | Ellen Willmott | Research | ww5.komen.org | 5005 LBJ Freeway Suite 250 Dallas, TX 75244 | 75-1835298 | |
Cystinosis Research Foundation | Cystinosis | Metabolic disorder | Nancy J. Stack | Research | www.cystinosisresearch.org | Cystinosis Research Foundation 18802 Bardeen Avenue Irvine, CA 92612 | 32-0067668 | |
Joining Jack | Duchenne muscular dystrophy (DMD) | www.joiningjack.org | Wigan, UK | |||||
Lung Cancer Research Foundation | Lung cancer | Oncology | Nancy M. Sandford | Research | www.lungcancerresearchfoundation.org | Lung Cancer Research Foundation 155 East 55th Street Suite 6H New York, NY 10022 | 14-1935776 | |
Arnold P. Gold Foundation | All | Healthcare system management | Richard I. Levin | Research | www.gold-foundation.org | Arnold P. Gold Foundation 619 East Palisade Avenue Englewood Cliffs, NJ 07632 | 22-3052098 | |
Prostate Cancer Foundation | Prostate cancer | Oncology | Jonathan W. Simons | Research | www.pcf.org | Prostate Cancer Foundation 1250 Fourth Street Santa Monica, CA 90401 | 95-4418411 | |
Midwest Athletes Against Childhood Cancer | Childhood cancer | Oncology | Jon McGlocklin | Research | www.maccfund.org | Midwest Athletes Against Childhood Cancer 10000 West Innovation Drive Suite 135 Milwaukee, WI 53226 | 39-1270290 | |
The Hastings Center | Age-related diseases, reproductive heath, cancer, HIV/AIDS | Children and Families, Aging, Chronic Conditions, and End of Life | Mildred Z. Solomon | Research | www.thehastingscenter.org | The Hastings Center 21 Malcolm Gordon Road Garrison, NY 10524 | 13-2662222 | |
A Foundation Building Strength | Nemaline Myopathy | Neuromuscular | Marc Guillet | Research | www.buildingstrength.org | 3825 El Camino Real, Palo Alto, CA 94306 | 26–1761329 | |
Scleroderma Research Foundation | Scleroderma | Autoimmune disease | Amy Hewitt | Research | www.srfcure.org | Scleroderma Research Foundation 220 Montgomery Street Suite 1411 San Francisco, CA 94104 | 68-0087234 | |
Duchenne Parent Project | Duchenne muscular dystrophy (DMD) | Neuromuscular | Elizabeth Vroom | www.duchenne.nl | Netherlands | |||
American Parkinson Disease Association (ADPA) | Parkinson's disease | Brain disease | Patrick McDermott | Research | www.apdaparkinson.org | 135 Parkinson Avenue Staten Island, NY 10305 | 13-1962771 | |
LGMD2i Research Fund | Limb-Girdle Muscular Dystrophy 2I (LGMD2I) | Neuromuscular | Research | www.lgmd2ifund.org | ||||
D-Rev Design for the Other Ninety Percent | Krista Donaldson | Research | www.d-rev.org | D-Rev Design for the Other Ninety Percent 695 Minnesota Street San Francisco, CA 94107 | 26-0642778 | |||
Blazeman Foundation for ALS | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Research | www.waronals.org | Barrington, Rhode Island, USA | Tax ID 20-8526311 | ||
American Medical Association Foundation | All | All | R. Barkley Payne | Research | www.ama-assn.org | American Medical Association Foundation 330 North Wabash Avenue Suite 39300 Chicago, IL 60611 | 36-6080517 | |
SMA Europe | Spinal muscular atrophy (SMA) | Neuromuscular, genetic disease | Marie-Christine Ouillade | Research | www.sma-europe.eu | |||
Minnesota Ovarian Cancer Alliance | Ovarian cancer | Oncology | Mary Pat Oslund | Research | www.mnovarian.org | Minnesota Ovarian Cancer Alliance 4604 Chicago Avenue South Minneapolis, MN 55407 | 41-1960449 | |
American Cancer Society, Inc. | Cancer | Oncology | Gary Reedy | Research | www.cancer.org | 250 Williams Street NW Atlanta, GA 30303 | 13-1788491 | |
Melanoma Research Alliance Foundation | Melanoma | Oncology | Debra Black | Research | www.curemelanoma.org | Melanoma Research Alliance 1101 New York Avenue, NW, Suite 620 Washington, DC 20005 | 26-1636099 | |
Organ Donation And Transplant Association Of America | Organ transplant | Organ transplant | Allan Weinberg | www.odtaa.org | Organ Donation And Transplant Association Of America 108 Lakeshore Drive Suite 440 North Palm Beach, | 30-0339531 | ||
Moffitt Cancer Center Foundation | Cancer | Oncology | Edward C. Droste | Research | www.moffitt.org | Moffitt Cancer Center Foundation 12902 Magnolia Drive Tampa, FL 33612 | 59-3238636 | |
The Multiple Myeloma Research Foundation | Multiple myeloma | Blood disease, cancer | Paul Giusti | Research | www.themmrf.org | The Multiple Myeloma Research Foundation 383 Main Avenue 5th Floor Norwalk, CT 06851 | 06-1504413 | |
American Committee for the Weizmann Institute of Science | Cancer | Oncology | Ellen Merlo | Research | www.weizmann-usa.org | American Committee for the Weizmann Institute of Science 633 Third Avenue 20th Floor | 13-1623886 | |
Michael's Cause | Duchenne muscular dystrophy (DMD) | Neuromuscular | Robert Capolongo (President and CEO) | Basic Science, Preclinical, IND-enabling, Phase 1, Phase 2 | www.michealscause.org | Staten Island, NY, USA | ||
Center for Infectious Disease Research | HIV/AIDS, TB, Malaria, Trypanosomiasis and Leishmaniasis, | Infectious disease | John Aitchison, PhD | Research | www.cidresearch.org | Center for Infectious Disease Research 307 Westlake Ave N Ste 500 Seattle, WA 98109 | 91-0961784 | |
Together in SMA with Biogen | Spinal muscular atrophy (SMA) | Neuromuscular, genetic disease | Research | www.togetherinsma.com | ||||
Power's Promise | Duchenne muscular dystrophy | Neuromuscular | www.powerspromise.org | Powers Promise, 426 main st. #309, Spotswood, NJ 08884 | 82-1063938 | |||
The Hope Foundation | Cancer | Oncology | Johanna Horn | Research | www.thehopefoundation.org | The Hope Foundation 24 Frank Lloyd Wright Drive P.O. Box 483 Ann Arbor, MI 48105 | 74-2655302 | |
Citizens United for Research in Epilepsy | Epilepsy | Neurological disorder | Sharon O'Keefe | Research | www.cureepilepsy.org | 430 West Erie Street Suite 210 Chicago, IL 60654 | 36-4253176 | |
NEXT for AUTISM | Autism | Neurodevelopmental disorder | Ilene Lainer | Research | www.nextforautism.org | NEXT for AUTISM 3 East 54th Street Fifth Floor New York, NY 10022 | 57-1136147 | |
The Italian Association Calpain 3 (AICa3) | Limb Girdle Muscular Dystrophy 2A (LGMD2A) and other calpainopathies | Neuromuscular | www.aica3.org | |||||
Community Health Charities of Nebraska | All | All | Michelle Grossman | Research | www.chcne.org | Community Health Charities of Nebraska 212 South 74th Street Omaha, NE 68114 | 23-7162972 | |
Steadman Philippon Research Institute | Orthopaedic sports medicine | Orthopaedic sports medicine | Dan Drawbaugh | Research | www.sprivail.org | Steadman Philippon Research Institute 181 West Meadow Drive Suite 1000 Vail, CO 81657 | 88-0245022 | |
Association for Glycogen Storage Disease | Pompe disease - Glycogen storage disease type II | Neuromuscular | Iris Ferrecchia | Research | www.agsdus.org | Association for Glycogen Storage Disease P.O. Box 896 Durant, IA 52747 | ||
Vascular Cures | Vascular disease | Vascular diseases | Wendy R. Hitchcock | Research | www.vascularcures.org | Vascular Cures 274 Redwood Shores Parkway Suite #717 Redwood City, CA 94065 | 94-2825216 | |
Acid Maltase Deficiency Association (AMDA) | Pompe disease - Glycogen storage disease type II | Neuromuscular | Research | www.amda-pompe.org | AMDA (Acid Maltase Deficiency Association) P.O. Box 700248 San Antonio, Texas 78270-0248 | |||
Ryan's Quest | Duchenne muscular dystrophy (DMD) | Neuromuscular | Dave Schultz (President and CEO) | Basic Science, Preclinical, IND-enabling, Phase 1, Phase 2 | http://www.ryansquest.org | Hamilton, NJ, USA | ||
Will Rogers Motion Picture Pioneers Foundation | Pulmonary disease | Pulmonary disease | Todd Vradenburg | Research | www.willrogersmotionpicture.org | Will Rogers Motion Picture Pioneers Foundation 6767 Forest Lawn Drive Ste 303 Los Angeles, CA 90068 | 15-0533551 | |
Mesothelioma Applied Research Foundation | Mesothelioma | Oncology | H. Richard Alexander | Research | www.curemeso.org | 1317 King Street Alexandria, VA 22314 | 75-2816066 | |
Hope for Gus | Duchenne muscular dystrophy (DMD) | Neuromuscular | Tonya Dreher, Steve Dreher | www.hopeforgus.org | Peterborough, NH, USA | |||
Kurt + Peter Foundation | Limb-Girdle Muscular Dystrophy 2C (LGMD2C) | Neuromuscular | Research | www.kurtpeterfoundation.org | P.O. Box 691, Menlo Park, CA 94026-0691 | |||
FRAXA Research Foundation | Autism | Neurodevelopmental disorder | Debbie Stevenson | Research | www.fraxa.org | 10 Prince Place, Suite 203 Newburyport, MA 01950 | 04-3222167 | |
Alzheimer's Research & Prevention Foundation | Alzheimer's disease | Brain disease | Dharma Singh Khalsa | Research | www.alzheimersprevention.org | Alzheimer's Research & Prevention Foundation P.O. Box 30783 Tucson, AZ 85751 | 86-0735832 | |
The Avon Foundation | Breast cancer | Oncology | Cheryl Heinonen | Research | www.avonfoundation.org | The Avon Foundation 777 Third Avenue New York, NY 10017 | 13-6128447 | |
24 Foundation | Cancer | Oncology | Mallory Walsh | Research | www.24foundation.org | 24 Foundation 801 East Morehead Street Suite 308 Charlotte, NC 28202 | 20-3768277 | |
Muscular Dystrophy UK | Muscular Dystrophy | Neuromuscular | Research | www.musculardystrophyuk.org | Muscular Dystrophy UK 61A Great Suffolk Street London | SC039445 | ||
China DMD Care and Support Association (CCSA) | Duchenne muscular dystrophy (DMD) | Neuromuscular | Jen Wang | www.blog.sina.com.cn/chinadmd110710 | Beijing, China | |||
International AIDS Vaccine Initiative | HIV/AIDS | Infectious disease | Mark Feinberg, Eric Goosby, Anne Vanlent | Research | www.iavi.org | International AIDS Vaccine Initiative 125 Broad Street 9th Floor New York, NY 10004 | 13-3870223 | |
American Diabetes Association | Diabetes mellitus Type 1, Type 2 | Metabolic disorder | Janel Wright | Research, Core Program, Pathway Program, Targeted RFAs, Community Programs | www.diabetes.org | American Diabetes Association 1701 North Beauregard Street Alexandria, VA 22311 | 13-1623888 | |
TB Alliance | Tuberculosis | Infectious disease | Mel Spigelman | Research | www.tballiance.org | TB Alliance 40 Wall Street 24th Floor New York, NY 10005 | 13-4128413 | |
Oral and Maxillofacial Surgery Foundation | Oral and maxillofacial surgery | Oral and maxillofacial surgery | Dwight Edwards | Research | www.omsfoundation.org | Oral and Maxillofacial Surgery Foundation 9700 West Bryn Mawr Avenue Rosemont, IL 60018 | 36-6111168 | |
ALS Therapy Development Institute | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Steven Perrin, Ph.D | Research | www.als.net | Cambridge, MA, USA | EIN 04-3462719 | |
LUNGevity Foundation | Lung cancer | Oncology | Andrea Stern Ferris | Research | www.lungevity.org | LUNGevity Foundation 228 South Wabash Avenue Suite 700 Chicago, IL 60604 | 36-4433410 | |
Action Duchenne | Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD) | Neuromuscular | Diana Ribeiro (CEO) | www.actionduchenne.org | London, England | Registered Charity Number 1101971, Scottish Charity No: SC043853 | ||
Cancer Research Institute | Cancer | Oncology | Jill O'Donnell-Tormey | Research | www.cancerresearch.org | Cancer Research Institute One Exchange Plaza 55 Broadway, Suite 1802 New York, NY 10006 | 13-1837442 | |
The Spinal Muscular Atrophy Foundation (SMA) | Spinal muscular atrophy (SMA) | Neuromuscular, genetic disease | Dinakar Singh | Basic research, clinical, transnational | www.smafoundation.org | SMA Foundation 888 Seventh Avenue, Suite 400 New York, NY 10019 | 01-0759380 | |
Duchenne Children's Trust | Duchenne muscular dystrophy (DMD) | Neuromuscular | The Duchess of Cornwall | www.duchenneuk.org | London, UK | |||
Target ALS | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Dan Doctoroff | Research | www.targetals.org | non-profit 501(c)(3) organization | ||
Parent Project Muscular Dystrophy (PPMD) | Duchenne muscular dystrophy (DMD) | www.parentprojectmd.org | Hackensack NJ, USA | |||||
Israel Cancer Association USA | Cancer | Oncology | Julie Gordon | www.icausa.org | Israel Cancer Association USA 2751 South Dixie Highway Suite #3A West Palm Beach, FL 33405 | 13-6218184 | ||
Project ALS | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Meredith Estess | Research | www.projectals.org | 801 Riverside Drive, Suite 6G New York, NY 10032 | 13-5562308 | |
MPN Research Foundation | Myeloproliferative disorders, polycythemia vera (PV), essential thrombocythemia (ET) and myelofibros | Oncology | Michelle Woehrle, Robert Rosen, Barbara Van Husen | Research | www.mpnresearchfoundation.org | MPN Research Foundation 180 North Michigan Ave. Suite 1870 Chicago, IL 60601 | 36-4330967 | |
American Federation for Aging Research (AFAR) | Alzheimers Disease, Stroke, Prostate Cancer, Osteoarthritis, Breast Cancer, Diabetes, Depression, Os | Age-related diseases | Research | www.afar.org | 55 West 39th Street 16th Floor New York, NY 10018 | 13-3045282 | ||
Van Andel Institute | All | All | David Van Andel | Research, Graduate School | www.vai.org | Van Andel Institute 333 Bostwick Avenue, NE Grand Rapids, MI 49503 | 52-2000820 | |
Foundation La Force | Duchenne muscular dystrophy (DMD) | Neuromuscular | Marie-Catherine Du Berger (President), Mireille Roy (Vice President) | www.laforcedmd.com | Montreal, Canada | |||
Spinal Muscular Atrophy Support UK | Spinal muscular atrophy (SMA) | Neuromuscular, genetic disease | Research | www.smasupportuk.org.uk | 40 Cygnet Court, Timothy's Bridge Road, Stratford-upon-Avon, Warwickshire, CV37 9NW | 1106815 | ||
CureDuchenne | Duchenne muscular dystrophy (DMD) | Neuromuscular | Grants, Loans, and Equity Financing through CureDuchenne Ventures | www.cureduchenne.org | Newport Beach CA, USA | |||
Dystonia Medical Research Foundation | Dystonia | Neurological movement disorder | Art Kessler, Samuel Belzberg, Stanley Fahn, MD | Research | www.dystonia-foundation.org | Dystonia Medical Research Foundation One East Wacker Drive Suite 1730 Chicago, IL 60601 | 95-3378526 | |
CDC Foundation | All | All | Judith Monroe | Research | www.cdcfoundation.org | CDC Foundation 55 Park Place Suite 400 Atlanta, GA 30303 | 58-2106707 | |
STOP CANCER | Cancer | Oncology | Bette L. Bergsman | Research | www.stopcancer.org | STOP CANCER 2566 Overland Avenue Suite 790 Los Angeles, CA 9006 | 95-4167790 | |
ALS Canuck | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Research | www.alscanuck.org | London, ON, Canada | 82713 7589 RR0001 | ||
Multidisciplinary Association for Psychedelic Studies | Neuropsychopharmacology | Neuropsychopharmacology | Rick Doblin | Research | www.maps.org | Multidisciplinary Association for Psychedelic Studies 1115 Mission Street Santa Cruz, CA 95060 | 59-2751953 | |
The Association for Glycogen Storage Disease UK | Glycogen storage disease | Neuromuscular | Research | www.agsd.org.uk | UK | Charity No 1132271 | ||
Diabetes Action Research and Education Foundation | Diabetes mellitus Type 1, Type 2 | Metabolic disorder | Pat DeVoe | Research | www.diabetesaction.org | Diabetes Action Research and Education Foundation 6701 Democracy Boulevard Suite 300 Bethesda, MD 20 | 52-1714027 | |
The Lustgarten Foundation for Pancreatic Cancer Research | Pancreatic cancer | Oncology | Kerri Kaplan | Research | www.lustgarten.org | The Lustgarten Foundation for Pancreatic Cancer Research 415 Crossways Park Drive Suite D Woodbury, | 31-1611837 | |
Hope & Heroes Children's Cancer Fund | Cancer | Oncology | Robert Bomersbach | Research | www.hopeandheroes.org | Hope & Heroes Children's Cancer Fund 161 Ft. Washington Avenue Irving Pavi | 74-3066193 | |
Brain & Behavior Research Foundation | Brain disease | Brain disease, Psychiatric disorders | Steve Lieber | Research | www.bbrfoundation.org | 90 Park Avenue 16th Floor New York, NY 10016 | 31-1020010 | |
Charley's Fund | Duchenne muscular dystrophy (DMD) | Neuromuscular | Tracy Seckler | www.charleysfund.org | Great Barrington, MA, USA | |||
Aktion Benni & Co / Parent Project | Duchenne muscular dystrophy (DMD) | Neuromuscular | www.aktionbenniundco.de | Bochum, Germany | ||||
Lankenau Institute for Medical Research | Diabetes mellitus Type 1, Type 2, Cancer, Cardiovascular diseases | Oncology, Cardiovascular diseases, and Diabetes | George C. Prendergast | Research | www.limr.org | Lankenau Institute for Medical Research 100 East Lancaster Avenue Wynnewood, PA 19096 | 23-2175659 | |
TIRR Foundation | Central nervous system damage rehabilitation | Neurological movement disorder | Cynthia Adkins | www.tirrfoundation.org | TIRR Foundation 4605 Post Oak Place Suite 222 Houston, TX 77027 | 76-0185588 | ||
The Genetic Disease Foundation (GDF) | Genetic diseases (Glycogen Storage Disease Type 1a, Nemaline Myopathy, etc) | Genetic disease | Elisa Ross | Research | www.geneticdiseasefoundation.org | The Genetic Disease Foundation 1425 Madison Avenue, Box 1498 New York, NY 10029 | non-profit 501c(3) organization | |
Rally Foundation | Childhood cancer | Oncology | Dean Crowe | Research | www.rallyfoundation.org | Rally Foundation 5775 Glenridge Drive Building B, Suite 370 Atlanta, GA 30328 | 20-1950849 | |
ALS Foundation | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Sheila Carlson | www.alsfoundation.org | Natick, MA, USA | 42-1582032 | ||
Samuel Waxman Cancer Research Foundation | Cancer | Oncology | Michael Nierenberg, Samuel Waxman | Research | www.waxmancancer.org | Samuel Waxman Cancer Research Foundation 420 Lexington Avenue Suite 825 New York, NY 10170 | 13-3020943 | |
Medic One Foundation | Emergency medicines | Emergency medicines | Jan Sprake | Research | www.mediconefoundation.org | Medic One Foundation Mail Stop 359747 325 Ninth Avenue Seattle, WA 98104 | 91-6183158 | |
Dr. Susan Love Research Foundation | Breast cancer | Oncology | Susan Love, MD, MBA, Heather Cooper Ortner | Research | www.drsusanloveresearch.org | Dr. Susan Love Research Foundation 16133 Ventura Boulevard Suite 1000 Encino, CA 91436 | 77-0009065 | |
Nash Avery Foundation | Duchenne muscular dystrophy (DMD) | Neuromuscular | Tom Wicka | www.nashaveryfoundation.org | Edina, MN, USA | |||
Pediatric Cancer Research Foundation | Childhood cancer | Oncology | Keith Koeller, Jeri Wilson | Research | www.pcrf-kids.org | Pediatric Cancer Research Foundation 9272 Jeronimo Road Suite 122 Irvine, CA 92618 | 95-3772528 | |
Alex's Lemonade Stand Foundation | Childhood cancer | Oncology | Research | www.alexslemonade.org | 333 East Lancaster Avenue Suite 414 Wynnewood, PA 19096 | 56-2496146 | ||
A Foundation Building Strength | Nemaline Myopathy | Neuromuscular | Marc Guillet | Research | www.buildingstrength.org | 3825 El Camino Real, Palo Alto, CA 94306 | 26–1761329 | |
End Duchenne | Duchenne muscular dystrophy (DMD) | Neuromuscular | www.endduchenne.cz | Czech Republic | ||||
Lupus Research Alliance | Lupus erythematosus | Autoimmune disease | Robert Ravitz | Research | www.lupusresearchinstitute.org | 330 Seventh Avenue Suite 1701 New York, NY 10001 | 06-1565950 | |
Chordoma Foundation | Chordoma | Oncology | Andrew Schoelkopf | Research | www.chordomafoundation.org | 2525 Meridian Parkway Suite 210 Durham, NC 27713 | 20-8423943 | |
The Buoniconti Fund to Cure Paralysis | Paralysis | Spinal cord injury | Marc A. Buoniconti | Research | www.themiamiproject.org | The Buoniconti Fund to Cure Paralysis 1095 Northwest Fourteenth Terrace Lois Pope LIFE Center Miami, | 65-0244316 | |
Foundation Fighting Blindness | Retinitis pigmentosa, age-related macular degeneration, Usher syndrome and retinal degenerative dise | Eye disease | David Brint, William Schmidt | Research | www.blindness.org | Foundation Fighting Blindness 7168 Columbia Gateway Drive Suite 100 Columbia, MD 21046 | 23-7135845 | |
Fight DMD | Duchenne muscular dystrophy (DMD) | Neuromuscular | Terry Marlin | Research department at Monroe Carell Jr. Children's Hospital | www.fightdmd.com | Nashville TN, USA | ||
Celebrity Fight Night Foundation | Parkinson's disease | Brain disease | Jimmy Walker | Research | www.celebrityfightnight.org | Celebrity Fight Night Foundation 2111 East Highland Suite 135 Phoenix, AZ 85016 | 86-0903119 | |
Foundation to Eradicate Duchenne (FED) | Duchenne muscular dystrophy (DMD) | Neuromuscular | Joel Wood, and Michelle Payne | www.duchennemd.org | Alexandria VA, USA | |||
Accelerated Cure Project for Multiple Sclerosis | Multiple Sclerosis | Autoimmune disease | Linda Kanner | Research | www.acceleratedcure.org | 460 Totten Pond Road Suite 420 Waltham, MA 02451 | 04-3555864 | |
International Society for Infectious Diseases | Infectious diseases | Infectious diseases | Chris Trimmer | Research | www.isid.org | International Society for Infectious Diseases Nine Babcock Street Unit 3 Brookline, MA 02446 | 22-2473000 | |
DuchenneConnect | Duchenne muscular dystrophy (DMD) | Pat Furlong | Research projects, and Clinical Trials | www.duchenneconnect.org | Atlanta GA, USA | |||
Ballou Skies | Duchenne muscular dystrophy (DMD) | Neuromuscular | https://www.ballouskies.com/ | Pittsburg, PA, USA | ||||
Christopher & Dana Reeve Foundation | Paralysis | Spinal cord injury | Peter Wilderotter | Research | www.christopherreeve.org | Christopher & Dana Reeve Foundation 636 Morris Turnpike Suite 3A Short Hills, NJ 07078 | 22-2939536 | |
Save our Sons (SOS) | Duchenne muscular dystrophy (DMD) | Neuromuscular | Elie Eid (President and CEO) | https://www.saveoursons.org.au/ | Australia | |||
Drugs for Neglected Diseases Initiative North America | Human African Trypanosomiasis, Leishmaniasis, Chagas disease, Paediatric HIV, Filarial diseases, Myc | Infectious disease | Rachel Cohen | Research | www.dndina.org | Drugs for Neglected Diseases Initiative North America 40 Wall Street 24th Floor New York, NY 10005 | 20-8774179 | |
International Rett Syndrome Foundation | Rett syndrome | Genetic postnatal neurological disorder | Gordon Rich | Research | www.rettsyndrome.org | International Rett Syndrome Foundation 4600 Devitt Drive Cincinnati, OH 45246 | 31-1682518 | |
International AIDS Vaccine Initiative | HIV/AIDS | Infectious disease | Mark Feinberg, Eric Goosby, Anne Vanlent | Research | www.iavi.org | International AIDS Vaccine Initiative 125 Broad Street 9th Floor New York, NY 10004 | 13-3870223 | |
Iron Horse Foundation | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Scott Kauffman | Research | www.ironhorse.org | Iron Horse Foundation 260 Churchill Avenue Palo Alto, CA, 94301 | 501(c)3 nonprofit organization | |
Salk Institute for Biological Studies | All | All | Elizabeth Blackburn | Research | www.salk.edu | Salk Institute for Biological Studies 10010 N Torrey Pines Rd La Jolla, CA 92037 | 95-2160097 | |
DMD Serbia | Duchenne muscular dystrophy (DMD) | Neuromuscular | www.dmdsrbija.rs | Becej, Serbia | ||||
Be The Match Foundation | Marrow donors | Blood disorders, cancers | Joy King | Research | www.bethematch.org | Be The Match Foundation 500 North 5th Street Minneapolis, MN 55401 | 41-1704734 | |
Hearing Health Foundation | Hearing loss | Hearing health | Nadine Dehgan | Research | www.hearinghealthfoundation.org | Hearing Health Foundation 363 Seventh Avenue 10th Floor New York, NY 10001 | 13-1882107 | |
Diabetes Research Institute Foundation | Diabetes mellitus Type 1, Type 2 | Metabolic disorder | Joshua W. Rednik | Research | www.diabetesresearch.org | Diabetes Research Institute Foundation 200 South Park Road Suite 100 Hollywood, FL 33021 | 59-1361955 | |
Emergency Medicine Foundation | Emergency medicines | Emergency medicines | Robert Heard | Research | www.emfoundation.org | Emergency Medicine Foundation 1125 Executive Circle Irving, TX 75038 | 75-2331221 | |
Monell Chemical Senses Center | Taste and smell disorders | Taste and smell disorders | Robert F. Margolskee, MD, Ph.D. | Research | www.monell.org | Monell Chemical Senses Center 3500 Market Street Philadelphia, PA 19104 | 23-2020897 | |
Suneel's Light | Duchenne muscular dystrophy (DMD) | Neuromuscular | Maria D Batt (Executive Director) | www.suneelslight.org | Willliamsville, NY, USA | |||
Jain Foundation | LGMD2B, Dysferlinopathy, Miyoshi (MMD1) | Neuromuscular | Douglas Albrecht (VP of Therapeutic Discoveries), Laura Rufibach (VP of Clinical Strategies), Bradle | see website | www.jain-foundation.org | Seattle, WA, USA | ||
Myelin Repair Foundation (MRF) | Multiple Sclerosis | Neurodegenerative disease, Demyelinating disease | Scott Johnson | Research | www.myelinrepair.org | 18809 Cox Ave, Saratoga, CA 95070, USA | 03-0485196 | |
McLaughlin Research Institute | Alzheimer's, and Parkinson's | Brain disease | Randy Gray | Research | www.mclaughlinresearch.org | 1520 23rd Street, S Great Falls, MT 59405 | 81-0459235 | |
Foundation for Orthopaedic Research and Education | Musculoskeletal disorder | Orthopaedic medicine | Derek Pupello | Research | www.foreonline.org | Foundation for Orthopaedic Research and Education 13020 North Telecom Parkway Tampa, FL 33637 | 59-3555349 | |
Rett Syndrome Research Trust | Rett Syndrome and related MECP2 disorders | Neurological, genetic disorder | Monica Coenraads | Research | www.reverserett.org | Rett Syndrome Research Trust 67 Under Cliff Road Trumbull, CT 06611 | 26-0687439 | |
The Italian Association of Emery Dreifuss Muscular Dystrophy (AIDMED) | Limb-Girdle Muscular Dystrophy 1B (LGMD1B) | Neuromuscular | www.aidmed.org | |||||
Masonic Medical Research Laboratory | Cardiac arrhythmia and Sudden death syndrome | Cardiovascular diseases | David F. Schneeweiss | Research | www.mmrl.edu | Masonic Medical Research Laboratory 2150 Bleecker Street Utica, NY 13501 | 13-5648611 | |
John Wayne Cancer Institute | Cancer | Oncology | Patrick Wayne | Research | www.california.providence.org/john-wayne | John Wayne Cancer Institute 2200 Santa Monica Boulevard Santa Monica, CA 90404 | 95-4291515 | |
Zubin's Wish | Duchenne muscular dystrophy (DMD) | Neuromuscular | www.zubinswish.org | Seattle, WA, USA | ||||
A Foundation Building Strength | Nemaline Myopathy | Neuromuscular | Marc Guillet | Research | www.buildingstrength.org | 3825 El Camino Real, Palo Alto, CA 94306 | 26–1761329 | |
LuMind Research Down Syndrome Foundation | Down Syndrome | Genetic, neurological disorder | Carolyn Cronin | Research | www.lumindrds.org | LuMind Research Down Syndrome Foundation 225 Cedar Hill Street Suite 200 Marlborough, MA 01752 | 37-1483975 | |
New York Academy of Medicine | All | All | Jo Ivey Boufford | Research | www.nyam.org | New York Academy of Medicine 1216 Fifth Avenue New York, NY 10029 | 13-1656674 | |
Canary Foundation | Cancer | Oncology | Don Listwin | Research | www.canaryfoundation.org | Canary Foundation 805 Veterans Boulevard Redwood City, CA 94063 | 65-1230251 | |
Damon Runyon Cancer Research Foundation | Cancer | Oncology | Lorraine W. Egan | Research | www.damonrunyon.org | Damon Runyon Cancer Research Foundation One Exchange Plaza 55 Broadway, Suite 302 New York, NY 10006 | 13-1933825 | |
Population Council | All | All | Julia Bunting | Research | www.popcouncil.org | Population Council One Dag Hammarskjold Plaza 9th Floor New York, NY 10017 | 13-1687001 | |
Sarcoma Foundation of America | Sarcoma | Oncology | Bert Thomas | Research | www.curesarcoma.org | Sarcoma Foundation of America 9899 Main Street Suite 204 Damascus, MD 20872 | 52-2275294 | |
St. Baldrick's Foundation | Childhood cancer | Oncology | Kathleen Ruddy | Research | www.stbaldricks.org | St. Baldrick's Foundation 1333 South Mayflower Avenue Suite 400 Monrovia, CA 91016 | 20-1173824 | |
Breast Cancer Research Foundation | Breast cancer | Oncology | Myra J. Biblowit | Research | www.bcrfcure.org | Breast Cancer Research Foundation 60 East 56th Street 8th Floor New York, NY 10022 | 13-3727250 | |
Oklahoma Medical Research Foundation | Age-related diseases, arthritis, and cardiovascular diseases | Age-related diseases, arthritis, and cardiovascular diseases | Stephen Prescott | Research | www.omrf.org | Oklahoma Medical Research Foundation 825 Northeast Thirteenth Street Oklahoma City, OK 73104 | 73-0580274 | |
Crohn's & Colitis Foundation of America | Crohn's disease, and Ulcerative Colitis | Autoimmune disease, Inflammatory bowel disease (IBD) | Michael Osso | Research | www.crohnscolitisfoundation.org | Crohn's & Colitis Foundation of America 733 Third Avenue Suite 510 New York, NY 10017 | 13-6193105 | |
LGMD2D Foundation | Limb-Girdle Muscular Dystrophy 2D (LGMD2D) | Neuromuscular | www.lgmd2d.org | |||||
Parkinson's Institute and Clinical Center | Parkinson's disease | Brain disease | Carrolee Barlow | Research | www.thepi.org | Parkinson's Institute and Clinical Center 675 Almanor Avenue Sunnyvale, CA 94085 | 94-3061594 | |
Myotonic Dystrophy Foundation | Myotonic Dystrophy | Neuromuscular | John D Porter, PhD (Chief Science Officer) | Post-doctoral Fellowships | www.myotonic.org | San Francisco, CA, USA | ||
Concern Foundation | Cancer | Oncology | Derek Alpert | Research | www.concernfoundation.org | Concern Foundation 11111 West Olympic Boulevard Suite 214 Los Angeles, CA 90064 | 23-7002878 | |
Orthopaedic Research and Education Foundation | Orthopedics | Orthopedics | Sharon Mellor | Research | www.oref.org | Orthopaedic Research and Education Foundation 9400 West Higgins Road Suite 215 Rosemont, IL 60018 | 36-6009467 | |
ALS Therapy Development Institute | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Steven Perrin, Ph.D | Research | www.als.net | Cambridge, MA, USA | EIN 04-3462719 | |
Israel Cancer Research Fund | Cancer | Oncology | Eric G. Heffler | Research | www.icrfonline.org | Israel Cancer Research Fund 295 Madison Avenue Suite 1030 New York, NY 10017 | 51-0181215 | |
Duchenne Family Support Group (DFSG) | Duchenne muscular dystrophy (DMD) | Neuromuscular | www.dfsg.org.uk | London, UK | ||||
Global Solutions for Infectious Diseases | HIV/AIDS, TB, Malaria, Trypanosomiasis and Leishmaniasis, | Infectious disease | Donald Francis | www.gsid.org | Global Solutions for Infectious Diseases 830 Dubuque Avenue South San Francisco, CA 94080 | 20-0941177 | ||
The Spanish Association of Patients with Glucogenosis (AEEG) | Pompe disease - Glycogen storage disease type II | Research | www.glucogenosis.org | Astigarragako Bidea 2, 6º izquierda oficina 2, 20180 Oiartzun (Gipuzkoa) | ||||
Stichting Spierkracht | Limb-Girdle Muscular Dystrophy 2D (LGMD2D) | Neuromuscular | www.stichtingspierkracht.nl | Stichting SpierKracht, Ida de Leeuwstraat 1, 2331 SN Leiden | ||||
Community Health Charities of California | All | All | David Pisani | Research | www.healthcharities.org | Community Health Charities of California 530 Bercut Drive Suite C Sacramento, CA 95814 | 94-1732873 | |
It's The Journey, Inc. | Breast cancer | Oncology | Kimberly Goff | Research | www.itsthejourney.org | It's The Journey, Inc. 270 Carpenter Drive Suite 515 Atlanta, GA 30328 | 47-0897591 | |
Foundation for Physical Therapy | Physical Therapy | Physical Therapy | Barbara Malm, MBA | www.foundation4pt.org | Foundation for Physical Therapy 1111 N. Fairfax Street Alexandria, VA 22314 | 13-6161225 | ||
Ovarian Cancer Research Fund Alliance | Ovarian cancer | Oncology | Audra Moran | Research | www.ocrfa.org | Ovarian Cancer Research Fund Alliance 14 Pennsylvania Plaza Suite 1710 New York, NY 10122 | 13-3806788 | |
Children's Leukemia Research Association | Leukemia | Oncology | Anthony R. Pasqua | Research | www.childrensleukemia.org | Children's Leukemia Research Association 585 Stewart Avenue Suite 18 Garden City, NY 11530 | 11-2106778 | |
AFM-Telethon (French Muscular Dystrophy Association) | Neuromuscular disorders | Neuromuscular | Laurence Tiennot-Herment | PhD, Postdoctoral Fellowships, Trampoline Research Grants | www.afm-telethon.com | France | ||
Roswell Park Alliance Foundation | Cancer | Oncology | Cindy Eller | Research, PhD programs, Master's programs, Residency programs, Post-Doctoral programs | www.roswellpark.edu | Roswell Park Alliance Foundation Elm and Carlton Streets Buffalo, NY 14263 | 16-1391608 | |
Healing Goodwill Foundation | Duchenne muscular dystrophy (DMD) | Neuromuscular | www.duchenne.hu/en | Hungary | ||||
Alzheimer’s Drug Discovery Foundation (ADDF) | Alzheimer's disease | Brain disease | Leonard A. Lauder, Ronald S. Lauder, Krishna Knabe | Research | www.alzdiscovery.org | Alzheimer's Drug Discovery Foundation 57 West 57th Street, Suite 904 New York, NY 10019 | 20-1082179 | |
American Liver Foundation | Liver disease | Organ disease | Thomas F. Nealon III | Research | www.liverfoundation.org | American Liver Foundation 39 Broadway, Suite 2700 New York, New York 10006 | 36-2883000 | |
AIDS United | HIV/AIDS | Immunology | Research | www.aidsunited.org | 1424 K Street NW Suite 200 Washington, DC 20005 | 52-1706646 | ||
American Foundation for Surgery of the Hand | Hand and wrist, trauma, arthritis/arthroplasty, shoulder and elbow, biologics, nerve and soft tissue | Hand and upper extremity surgery | Steven Z. Glickel | Research | www.assh.org | American Foundation for Surgery of the Hand 822 West Washington Boulevard Chicago, IL 60607 | 74-2428242 | |
Famiglie SMA | Spinal muscular atrophy (SMA) | Neuromuscular, genetic disease | Research | www.famigliesma.org | c/o Consorzio Cooperho Job Caffè via Lamarmora 7 20020 Lainate (MI) | |||
National Multiple Sclerosis Society | Multiple Sclerosis | Neurodegenerative disease, Demyelinating disease | Peter A. Galligan | Research | www.nationalmssociety.org | National Multiple Sclerosis Society 733 Third Avenue 3rd Floor New York, NY 10017 | 13-5661935 | |
Duchenne Now | Duchenne muscular dystrophy (DMD) | Neuromuscular | Paul Fitzpatrick | www.duchennenow.org | Lancashire, UK | |||
National Pediatric Cancer Foundation | Childhood cancer | Oncology | David Frazer | Research | www.nationalpcf.org | National Pediatric Cancer Foundation 5550 West Executive Drive Suite 300 Tampa, FL 33609 | 59-3097333 | |
March of Dimes Foundation | Premature birth, birth defects, infant mortality, infant health | Birth | Research, European Prematurity Research Center, Basil O’Connor Starter Scholar Research Awards, Cong | www.marchofdimes.org | March of Dimes National Office 1275 Mamaroneck Avenue White Plains, NY 10605 | 13-1846366 | ||
Brain Research Foundation | Brain disease | Brain disease | Terre A. Constantine, Ph.D. | Research | www.thebrf.org | Brain Research Foundation 111 West Washington Street Suite 1460 Chicago, IL 60602 | 36-2477928 | |
Children's Cancer & Blood Foundation | Blood disease, cancer | Blood disease, cancer | Susie Park | Research | www.childrenscbf.org | Children's Cancer & Blood Foundation 333 East 38th Street Suite 830 New York, NY 10016 | 13-6019222 | |
Prize4Life | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Amy Jenkins | Research Prize for ALS Model, Biomarker Prize, Treatment Prize, and Prediction Prize | www.prize4life.org | Berkeley, CA, USA | 501(c)(3) nonprofit organization | |
Duchenne Research Fund | Duchenne muscular dystrophy (DMD) | Neuromuscular | Projects, Pre-clinical research, Clinical research, and Awards | www.duchenne.org.uk | London, UK | |||
Romito Foundation | Duchenne muscular dystrophy (DMD) | Neuromuscular | Richard Romito | www.romitofoundation.org | Frederick, CO, USA | |||
The Foundation for Muscular Dystrophy Research (SMDF) | Duchenne muscular dystrophy (DMD) | Neuromuscular | Petra Palmgren Lindwall | www.smdf.se | Sweden | |||
ALS Association | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Research | www.alsa.org | Washington, DC, USA | 52-1749047 | ||
ALS Hope Foundation (ALSHF) | Amyotrophic lateral sclerosis (ALS) | Motor neuron disease (MND) | Basic and Clinical Research | www.alshf.org | Philadelphia, PA, USA | EIN 23-3010389 | ||
Duchenne Muscular Dystrophy Research Fund (DMDfund) | Duchenne muscular dystrophy (DMD) | Neuromuscular | Kyle Kyllan | www.dmdfund.org | Encio CA, USA | |||
The Italian Association Calpain 3 (AlCa3) | Limb-Girdle Muscular Dystrophy 2A (LGMD2A) | Neuromuscular | www.aica3.org | Milano, Italy | ||||
Doheny Eye Institute | Retinitis pigmentosa, age-related macular degeneration, Usher syndrome, retinal degenerative disease | Eye disease, blindness | Marissa Goldberg | Research | www.doheny.org | Doheny Eye Institute Post Office Box 86228 Los Angeles, CA 90086 | 95-2916590 | |
T.J. Martell Foundation | Leukemia, Cancer, and HIV/AIDS | Oncology, Autoimmune diseases, and Infectious diseases | Laura Heatherly | Research | www.tjmartell.org | T.J. Martell Foundation 260 Madison Avenue Eighth Floor New York, NY 10013 | 51-0180178 |